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Art of healing

Death, Its Breath, Always Breathing

“I don’t want to die,” she tells me. Death, its breath, irrespective of age, of anyone’s age, breathing then, always breathing. Read the rest of this entry »

Tears on My Pillow

 

It could never go on forever.

 

Never does.

 

Not life. Not happiness. Not this. Not any one friendship.

 

Me?

 

I’m thinking this, only days after watching Bruce Springsteen sing elegiacally in Kansas City of his own city — by intimation, by extension, of his friendship with the dead Clarence Clemons — of a city, their city back then, of Clarence, lost now, of their friendship, their love, this, theirs, now, a city of ruins.

 

The Boss then slow-stepping sideways into lights lighting the far corner of the stage that had so long been the Big Man’s.

 

“Now, there’s tears on the pillow,” Bruce, so haunted himself, went on to sing, “…you took my heart when you left/ without your sweet kiss/ my soul is lost, my friend.”

 

And me, the palliative doc, watching, listening, feeling, hearing in Springsteen’s voice, seeing in his shadow, itself shadowing a cone of light, the ghost of one friendship past, the ghosts of life itself.

 

Bruce, all at once, without the friend of his life.

 

Me, counting the loss of so many lives in my life.

 

My mother. My father.

 

Just this week a much-loved uncle. And before, aunts, uncles, grandparents. Friends, too. And only this past weekend, yet another patient.

 

Call him Jim.

 

Just 50.

 

Wife, three kids, the youngest, a daughter, only a girl, herself just 11.

 

Beautiful farm, our outpatient nurse-practitioner had told me.

 

A house Jim had himself built.

 

His whole life, for all he knew, for all any of us ever know, ahead of him.

 

Only then, a year ago, at another time of thanks, to find himself ill, to find himself losing weight. Only weeks later, only days after a new year suddenly made unhappy, a pathologist telling the tale: cancer, and mere months later, by CT, cancer…cancer everywhere.

 

Jim’s father had died at 44.

 

Jim himself explaining that he, young then, had felt robbed by his dad’s death, only now, tears flowing, to have death thieve from his own children their chance to have their own dad there.

 

His college-aged daughter all too soon graduating without him at graduation. A son, in high school, no dad to see him through high school to college, to marriage, to grandchildren. That little girl, herself with her whole life ahead of her, only knowing her dad this long, these few 11 years.

 

“My dad is going to die,” that little girl had told our social worker some few weeks ago.

 

My own brother was himself 11 when our mother died of breast cancer, me then all but 30.

 

To this day, I cannot know what Patrick experienced then at 11.

 

What I remember, these 31 years later, is Patrick making our mom laugh, often over nothing, she so sick, he coming in from school, his smile, whatever words, her face all at once alit, until one day, one June, the light that had been our mother went out.

 

And after that, Karen and I making Patrick, my brother, our son.

 

And now little Maria, her dad gone.

 

Her big sister away at college. Her older brother coping as best he himself can. Their mom, the widow she could never have imagined herself being, certainly not now, never this young.

 

And me, all these years after my own mother’s death, often in those years contemplating what that had meant to Patrick back then, now thinking the same, wondering what thoughts now darken Maria’s thoughts these few days after her dad’s death.

 

And what would I, were I with Maria, tell her tonight…

 

Tell her that her life might be still be life; may yet be the life her dad would have wished for her; that some day, not any day soon, she may yet get through a day without thinking of her dad, of this, her loss…

 

Maria, only then, like me, these 31 years after I lost my mother, 18 after saying goodbye to my father, remembering…

 

Remembering what was.

 

All that love suddenly lost. Maria knowing, in the end, what I already know, that there is no end to this, this grief, even when life itself ends.

 

Back at Jim’s farm, his wife, their children, this week look out to the evening trees.

 

And me here this evening, not so many miles from that farm, wishing that family sweet veils of mercy, those of which Bruce sang in that same song, those veils drifting through those same evening trees. Bruce’s next question, as for me once, for my brother, too, for Jim’s wife, for his children, the question that is now, has always been…

 

“Now, tell me how do I begin again?”

 

 

Final Search for the Authentic Self

It’s not uncommon to hear people say something like, “Well, he’s going to die the way he lived.” If he was a loner, perhaps he’d like to die alone. If she was a talker, perhaps she’d like to die with lots of people around talking. Sure, sometimes the way people have lived can be a helpful guide to how they might want to die. But ...... Read the rest of this entry »

The Quiet Vigil

Why do some people deal this way, and others go into battle mode, and lash out at everyone around? My theory is that they are at peace in some way while others are still at war. Read the rest of this entry »

Through the Therapeutic Window

Through the therapeutic window comes in a shard of light. And in that light is hope, is bliss, is warmth. And a suggestion of an opening into a place that is kept hidden oftentimes from oneself and then can only manifest through others. Read the rest of this entry »

The Care Plan After Death

On a number of occasions, I have sat bedside with an actively dying client that was more anxious about how their spouse, children, and or significant other will navigate the world without their presence. After taking time to explore the source of the anxiety, I realized that all of the attention to the client’s signs and symptoms were barely scratching the surface of the emotional pain associated with dying. Read the rest of this entry »

Can We Talk? Helping our loved ones express their end-of-life wishes

Crucial end-of-life conversations which should ideally occur in a non-crisis time in the comfort of our homes unfortunately happen during a time of medical crisis in the chaos of the hospital. When we are in crisis mode, we tend to “go with the medical flow”. As the current healthcare default is heavily slanted towards initiating medical technology without much deep thought about the benefits and burdens of such treatment, many patients are subjected to ineffective, burdensome treatments and interventions that may not be congruent with their goals of care. Read the rest of this entry »

Summer Storms, Summer Myths

Almost 20 years ago, a family member died in August. The funeral ritual was interrupted by thunder, lightening, and pouring rain. We thought of the storm as a declaration of arrival. Perhaps even a celebration. The next year there was a thunder storm on the same day. Family and friends phoned each other to comment on the coincidence and to reminisce. The next year it happened yet again. Read the rest of this entry »

For Maria

Stand for a moment where I’m standing now. Me here, thumbing a chart. My face to a window, a window looking in on a room in the ICU. And me all at once, looking to the window, into the room, to the patient beyond, thinking, yes, Maria, I do know you. I do know you, Maria. Read the rest of this entry »

Tell me what miracle means. by JPM Columnist Seema Nagpal, MD

Tell me what miracle means. From the first appointment I have with them, many patients tell me they are looking for a miracle. That they believe they will be in the tiny percent of patients who are long-term survivors of glioblastoma, one of the most deadly brain cancers. Or that their brain metastases from metastatic lung cancer will disappear. Read the rest of this entry »

“A Palette of Care”: Haslinger Pediatric Palliative Care Center (Guest Post by Dr. Sarah Friebert)

At the Haslinger Family Pediatric Palliative Care Center, each child and family can pick and choose the colors they need or want to create the most beautiful painting possible of life and hope. This image was inspired by two simultaneous events: a letter received from one of our bereaved mothers, thanking us for the care we provided for her son, and a watercolor painting done by a young artist in our program, who was dying of a rare spinal cord tumor but who brought forth onto a canvas the image of a palette of colors as she depicted what palliative care had meant to her and her family during her journey. Read the rest of this entry »

“Posttraumatic Growth: A Personal Example” by JPM Columnist Susan Cadell

In the mid-90s, I was experiencing more grief and loss than I could have ever imagined. It was the height of the AIDS epidemic in Canada, and many of my friends were dying. As a young straight woman with numerous gay male friends, I was impacted by HIV/AIDS more than most of the people around me. Read the rest of this entry »

A Randomized Clinical Trial on Family Hospice Caregivers (Guest Post by George Demiris, PhD)

We designed a randomized non-inferiority trial with two groups, Group 1 in which caregivers received Problem Solving Therapy face to face, and Group 2 via videophone. The study purpose was to compare the effectiveness of a PST intervention delivered face to face and via videophone to hospice primary caregivers. Read the rest of this entry »

Happy Birthday to JPM Social Media!

As of today (July 1, 2012), your JPM Social Media is a one year old! To this date, we have a total of 173 posts written by about 38 inter-professional experts, 565 comments, a total of 1406 subscribers through and about 2200 hits per day! Yes, everyone, your JPM Social Media blog is definitely a very popular and high-traffic site. Read the rest of this entry »

Memorial Day

.......the song was inspired by The Book of Ecclesiastes. ...A time to die... We seem to have forgotten. Read the rest of this entry »
Can We Talk?
Watch and share this five minute video about the need for prophylactic end-of-life conversations. Laura Heldebrand, an ICU nurse tells her mother's story.
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