Death and Dying in the Magic Kingdom
I just came back from teaching a palliative nursing course at the Disneyland Hotel in California. That might seem an odd juxtaposition but, from a self-care standpoint, it was great.
First, the hotel is consistently, and occasionally relentlessly, cheerful with perky “cast members” greeting you brightly at all hours of the day. Guests walk around wearing Mickey Mouse ears, princess dresses and tiaras, and other aspects of various Disney characters. The weather was gloriously sunny, and warm.
The course was the End-of-Life-Nursing- Education Consortium’s (ELNEC) Summit. This is the concurrent offering of its Core, Critical Care, and Pediatric Train-the-Trainer curricula. Read the rest of this entry »
Encourage the Struggling Providers
What do we do when our lives are so full of suffering that we just cannot hear about it any more? As palliative care providers, it is our job to join with patients and their families in their agony and sadness. We do this several times a day, every day. But what happens to us and our work when we have had our fill? Read the rest of this entry »
Aversion to Planning for Serious Illness
We all know that a majority of Americans, 70-80% depending on the study, do not have advance directives or do Advance Care Planning (ACP). There’s a lot in the literature that shows people are reluctant to plan for an unknown or hypothetical future, or think about their own disability and eventual death. One hope I cherished was that the caregivers of those experiencing serious illness would be the group to take leadership in planning for their own futures. Read the rest of this entry »
A Randomized Clinical Trial on Family Hospice Caregivers (Guest Post by George Demiris, PhD)
We designed a randomized non-inferiority trial with two groups, Group 1 in which caregivers received Problem Solving Therapy face to face, and Group 2 via videophone. The study purpose was to compare the effectiveness of a PST intervention delivered face to face and via videophone to hospice primary caregivers. Read the rest of this entry »
Can we talk?: Veterans participate enthusiastically in National Health Care Decisions Day
April 17, 2012, will be the fifth annual National Healthcare Decisions Day.
The goal of this nationwide initiative is to ensure that all adults with decision-making capacity in America have both the information and the opportunity to communicate and document their future healthcare decisions. In the brief video posted, Veterans advocate enthusiastically for completing Advance Care Planning Read the rest of this entry »
Reclaiming Life On One’s Own Terms: Post Cancer Diagnosis and Treatment
Based on a group of 15 women who were recruited online from the Share website, we developed a theory which identifies the process of breast cancer survivorship as a process marked and shaped by time, as well as by perceptions of support which can be positive or negative. The diagnosis and treatment of breast cancer is described as the “Turning Point” or stimulus for change. Life is described as before and after breast cancer and is marked by weeks, months, and years following diagnosis and treatment. Over time, breast cancer is recognized as “a part of life” as women “learn to live with breast cancer,” and eventually “create a new life after breast cancer.” Read the rest of this entry »
Infinite-Caring Being : by JPM Guest Blogger Virginia Seno, PhD, RN
I’m reminded of the time when my late husband Josh died with a mere 17 days from diagnosis to death. Doctors, nurses, aides and others said and did many harmful things; and I had enormous work to do to get good care. I didn’t need that but that’s what I got. Read the rest of this entry »







