“If You’re In, then I’m Out”
"If you're in, then I'm out."
I see this routinely in the charts of patients referred to our outpatient palliative care program:
“Will defer further outreach and follow-up as patient has been referred to palliative care.”
“Patient to be followed by home palliative care, so no further follow-up needed.”
“Patient interested in hospice care, but will defer discussion to palliative care.”
A few days ago, a primary care RN told me, “if you’re in, then I’m out.” Read the rest of this entry »
Enough with the crystal balls!
I’m puzzled at how most clinicians I work with have somehow learned to use the crystal ball metaphor when discussing prognosis. As in “We don’t have a crystal ball” (so we can’t say how much time you have left).
Really? Read the rest of this entry »
Encourage the Struggling Providers
What do we do when our lives are so full of suffering that we just cannot hear about it any more? As palliative care providers, it is our job to join with patients and their families in their agony and sadness. We do this several times a day, every day. But what happens to us and our work when we have had our fill? Read the rest of this entry »
Through the Therapeutic Window
Through the therapeutic window comes in a shard of light. And in that light is hope, is bliss, is warmth. And a suggestion of an opening into a place that is kept hidden oftentimes from oneself and then can only manifest through others. Read the rest of this entry »
How it all began: Founding the first US free-standing pediatric palliative care center (Guest post by Dr. Barbara Beach)
It began with Jim. He was a big-hearted, courageous young man dying of cancer, and I was a young pediatric oncologist at the beginning of my career, not 10 years his senior. Jim simply wanted to die at home, in the company of his mother, away from the hospital where he had spent so many weeks and months battling his disease. Yet as hard as I tried, I wasn’t able to make his final wish possible Read the rest of this entry »
Reminder to Self
I’ve been thinking a lot about advance-care planning lately. (For the last few years, truth be told.)This isn’t just advice for Everyone Else. It applies to me, too.
It’s not that I’m unwilling to think about something happening to me. In fact, I worry more about my wife in a situation like that. If something happens to me, she wouldn’t have my written wishes to follow. To say she would agonize would be an understatement. Read the rest of this entry »
JPM Honors All Mothers Worldwide: Happy Mother’s Day
The unconditional love and compassion that is the cardinal aspect of a Mother's expression of her caring is also a key premise of palliative care. We take the opportunity today to thank all mothers worldwide for teaching us the caring and compassion we show all our patients and families. Read the rest of this entry »
Patients Encourage Patients to Complete Advance Care Planning: 90 second video on National Healthcare Decision Day 2012
Watch this 90 second video about National Healthcare Decision Day, April 16, 2012. In this patients advocate enthusiastically for advance care planning. There goes another myth that patients resist completing advance directives. Read the rest of this entry »
Can we talk?: Veterans participate enthusiastically in National Health Care Decisions Day
April 17, 2012, will be the fifth annual National Healthcare Decisions Day.
The goal of this nationwide initiative is to ensure that all adults with decision-making capacity in America have both the information and the opportunity to communicate and document their future healthcare decisions. In the brief video posted, Veterans advocate enthusiastically for completing Advance Care Planning Read the rest of this entry »






