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Advocacy

Seeing is believing

Eye on Flat Panel MonitorAs an eternal optimist, hey I work in palliative care, I am hopeful that new handheld technology will help patients and families make more appropriate decisions about how much aggressive medical care they want at the end of life. Some studies are showing that when people see videos of end-stage conditions such as dementia http://www.ncbi.nlm.nih.gov/pubmed/?term=17452547  or CPR http://www.ncbi.nlm.nih.gov/pubmed/23233708, they are more inclined to choose comfort-oriented approaches.  This makes sense in that discussions of hypothetical end-stage situations are likely too hypothetical (see most living will language). Most people outside of healthcare lack knowledge about the reality of such interventions or misunderstand their capabilities given what they see on unrealistic television programs or in the movies.

Several healthcare institutions are starting to use tablets in the ED or other clinical areas http://www.medicalnewstoday.com/articles/242843.php as a way to help people learn about their medical condition and treatment plan. If the tablets are already there, we in palliative care should think about to use them to show the kind of scenarios we discuss with patients and families every day. We don’t even need to develop our own as there are now companies that supply videos to help people learn more about this area such as  http://www.acpdecisions.org/

And who knows? Maybe video will end up helping to educate rather than mislead!

P.S. This is also the subject of Eric Widera’s most recent GeriPal post at http://www.geripal.org/2013/05/the-clinician-as-choice-architect.html. Great minds think alike!

The Name Debate: “Palliative” vs. “Supportive” Care

On this issue I’d long been a believer in “palliative”. After all, most Americans don’t know what palliative care is http://bit.ly/jIChMM and so it seemed an opportunity to build awareness behind the concept. (This is the ideal marketing situation where you get to define what your product or service stands for.) Read the rest of this entry »

Give me liberty or give me death (via aggressive medical care)

An NPR story last week described Americans as more willing to support policies if they’re framed in the language of individual liberty instead of benefiting the common good. This was discussed in the context of gun control. But it has ramifications for end-of-life policies as well. Read the rest of this entry »

Aversion to Planning for Serious Illness

We all know that a majority of Americans, 70-80% depending on the study, do not have advance directives or do Advance Care Planning (ACP). There’s a lot in the literature that shows people are reluctant to plan for an unknown or hypothetical future, or think about their own disability and eventual death. One hope I cherished was that the caregivers of those experiencing serious illness would be the group to take leadership in planning for their own futures. Read the rest of this entry »

More on Language: Avoiding the “d” and “h” words when talking about Palliative Care

I’d love to start hearing compelling stories about how early palliative care makes a difference. Like the patient I met last month at my hospital. He had been diagnosed with stage IV lung cancer but had a very high functional status. Despite the cancer’s late stage, his oncologist suggested trying some chemo and radiation. And watching him wolf down his hospital lunch, I couldn’t disagree. Read the rest of this entry »

The Care Plan After Death

On a number of occasions, I have sat bedside with an actively dying client that was more anxious about how their spouse, children, and or significant other will navigate the world without their presence. After taking time to explore the source of the anxiety, I realized that all of the attention to the client’s signs and symptoms were barely scratching the surface of the emotional pain associated with dying. Read the rest of this entry »

Can We Talk? Helping our loved ones express their end-of-life wishes

Crucial end-of-life conversations which should ideally occur in a non-crisis time in the comfort of our homes unfortunately happen during a time of medical crisis in the chaos of the hospital. When we are in crisis mode, we tend to “go with the medical flow”. As the current healthcare default is heavily slanted towards initiating medical technology without much deep thought about the benefits and burdens of such treatment, many patients are subjected to ineffective, burdensome treatments and interventions that may not be congruent with their goals of care. Read the rest of this entry »

Out of Africa: JPM Correspondent from Africa on Palliative Care in Nigeria

Ogun State Nigeria's goal "Provide quality and timely clinical and other support services to patients and clients at a reasonable cost within its jurisdiction. “In doing so, we shall adopt a multidisciplinary team approach for the provision of prompt, excellent and cost effective Health care services in Ogun state" Read the rest of this entry »

Social Media is Now!

Recently I have noticed more postings to departed loved ones on their anniversaries of passing. It appears to be a novel way of professing out loud one’s grief and love for family or friends who have passed on. Read the rest of this entry »

Language is Important! by JPM Columnist Marian Grant, NP

We all have experience with patients and families where what we say, and how we say it, matters. As palliative care professionals, most of us are expert communicators. We know, for instance, that talking about DNAR (Do not attempt resuscitation) vs. DNR (Do not resuscitate) can result in two different conversations. But are we careful enough about the words we use when we talk about palliative care? Read the rest of this entry »

“You just go ahead and thump on my chest!” by JPM Columnist Donal Gordon

“You just go ahead and thump on my chest,” she tells me with a smile, after I tell her all that. And I tell her okay. Who am I to say to her, that even at 93, she doesn’t deserve this.... Read the rest of this entry »

Comparing Symptom Burden in Patients with Metastatic and Nonmetastatic Cancer. (Guest Post by Mike Rabow, MD, USCF)

Our study demonstrated that at least a sizeable minority of patients with curable cancers can still suffer as much as patients with advanced cancer who might be expected to die of their disease. Having found significant unmet need among these cancer patients, the question remains what other patients have significant unmet needs that a palliative care clinic can help address? Read the rest of this entry »

Happy Birthday to JPM Social Media!

As of today (July 1, 2012), your JPM Social Media is a one year old! To this date, we have a total of 173 posts written by about 38 inter-professional experts, 565 comments, a total of 1406 subscribers through and about 2200 hits per day! Yes, everyone, your JPM Social Media blog is definitely a very popular and high-traffic site. Read the rest of this entry »

The Medical System’s Quarterback

My town’s football team has a new, talented, high-profile (and very expensive) quarterback. Expectations and hopes are very high for his skill and leadership ability –a lot of pressure on one person! In a recent Time magazine online article about the “feverish” growth of hospital palliative care programs, Read the rest of this entry »

Reminder to Self

I’ve been thinking a lot about advance-care planning lately. (For the last few years, truth be told.)This isn’t just advice for Everyone Else. It applies to me, too. It’s not that I’m unwilling to think about something happening to me. In fact, I worry more about my wife in a situation like that. If something happens to me, she wouldn’t have my written wishes to follow. To say she would agonize would be an understatement. Read the rest of this entry »
Can We Talk?
Watch and share this five minute video about the need for prophylactic end-of-life conversations. Laura Heldebrand, an ICU nurse tells her mother's story.
High Traffic Alert !
Your JPM blog is a high traffic site. We have 1406 subscribers. In August 2012, we had 140,372 hits (this number is excluding bots and spider traffic)! Many thanks to you all for your love and support of your Journal of Palliative Medicine.
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